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Tuesday, February 1, 2011
8:00 am -
9:00 am
Pre-Summit Workshop Registration and Welcome Coffee
9:00 am -
11:30 am
PRE-SUMMIT WORKSHOP: Changes in Health Care to Make Precision Medicine, Genomics and Personalized Medicine a Reality
By attending this workshop attendees will learn the following:
  • Optimizing the Use of Genetic Testing to Advance Personalized Medicine, Cut Unnecessary Health Care Spending and Increase Efficiencies
    • How comparable are patient populations?
    • How decision-support systems help "connect the dots" for payers and physicians regarding the available scientific literature and insurers' coverage criteria for genomic tests
    • Understand why it is critical to focus on adoption of methods and tools for personalization of care, easy to access and use at the point of care
    • Applying pharmacogenomics to health care and the potential to provide numerous benefits for more accurate drug dosing, improving safety of therapies and less waste in the system
    • Mapping human genome to increase knowledge, resources and technology in medical science
  • Optimizing the Use of Molecular Testing to Advance Personalized Medicine, Reduce Unnecessary Use of Health Care Resources and Increase Efficiencies
    • Challenges the lack of data on health outcomes has had on the use of genetic testing
    • What is the clinical utility of personalized medicine?
Adam Clark, PhD
Director of Scientific and Federal Affairs
FasterCures

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Amy Miller, PhD, PMC
Public Policy Director
Personalized Medicine Coalition
Other Thought Leaders TBD
11:30 am -
12:30 pm
Main Summit Registration in the Executive Networking Lounge; Lunch on your Own
12:30 pm -
12:45 pm
CHAIRPERSON’S WELCOME AND OPENING REMARKS
Dennis A. Robbins - Speaker Photo Dennis A. Robbins, PhD, MPH
Adjunct Professor, Graduate School of Public Policy, Pepperdine University;
Advisory Board Member, National Research Network

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12:45 pm -
1:45 pm
OPENING KEYNOTE PANEL DISCUSSION: Use of Comparative Effectiveness Research in Health Care Reform
  • Uncover how the $1.1 billion ARRA funds being disseminated?
  • Discuss the different types of treatments comparative effectiveness research compare?
  • Should comparative effectiveness research include measures of cost?
  • Discuss how the HHS awards will help better leverage data quality and ultimately improve primary care services for low-income and underinsured populations
  • Explore how comparative effectiveness research is helping to shape how states are designing patient-centered practices
Constantine A. Gatsonis, PhD
Professor of Medical Science (Biostatistics) and Director
Center for Statistical Sciences, Brown Uni­versity
Mark Gibson - Speaker Photo Mark Gibson
Deputy Director, Center for Evidence-Based Policy
Oregon Health and Science University

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David Pizzi
Director, Health Care Policy
Blue Cross and Blue Shield of Florida

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1:45 pm -
3:00 pm
PANEL DISCUSSION: Navigating the Practice-Based CER Ethics Interface – Challenges and Opportunities
This session will explore the interface of comparative effectiveness findings and the challenges of implementation at the practice and patient level. CER will influence both clinical decision making and determination of medical necessity and coverage, coupled with pressure from quality initiatives and lean concepts. Science and data will begin to supersede the politics of special interests and disciplines’ pet products and procedures to help guide optimal effective treatment choices. They will likely also stimulate more consistent Utilization Management decisions across payers, geographies and specialties. We will also explore the oft ignored aspect of real-life implementation, including the everyday day challenges of making CER-based changes within practice and the critical but thorny issue of obtaining timely feedback from patients. In this way we will move this discussion from the ethereal stratosphere to real life practice and address issues of implementation, disparity and ethics.
Moderator:
Dennis A. Robbins - Speaker Photo Dennis A. Robbins, PhD, MPH
Adjunct Professor, Graduate School of Public Policy, Pepperdine University;
Advisory Board Member, National Research Network

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Panelists:
John Lynch, MPH
Executive Director
Connecticut Center for Primary Care
Board of Directors
eHealthConnecticut

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Elizabeth E. Stewart, PhD, MBA
Research Scientist
American Academy of Family Physicians National Research Network (AAFP NRN)
Patricia Hinton Walker - Speaker Photo Patricia Hinton Walker, PhD, RN, FAAN
Vice President for Nursing Policy, Uniformed Services University of the Health Sciences
Chair, Executive Leadership, TIGER III (Technology Informatics Guiding Education Reform)

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Other Thought Leaders TBD
3:00 pm -
3:30 pm
Networking and Refreshment Break in the Executive Networking Lounge
3:30 pm -
4:30 pm
The FDA Perspective on Comparative Effectiveness Research and the Enhancements to Support Personalized Medicine
  • Hear how the FDA is engaging in comparative effectiveness research and collaborating with outside groups to investigate FDA data
  • Discuss the goals to define subsets of populations, disease research areas and areas for product classes
  • Learn of the clinical trial design strategies to support comparative effectiveness research and personalized medicine
Vicki Seyfert-Margolis, Ph.D
Chief Scientific Officer, Immune Tolerance Network
Food and Drug Administration (FDA)

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4:30 pm -
5:30 pm
CLOSING KEYNOTE ADDRESS: Design and Implementation of Clinical Trials for Comparative Effectiveness Research
  • Why clinical trials are an important tool for comparative effectiveness research
  • Designing more informative clinical trials for patients, clinicians and payers
  • Understand the challenges in addressing multiple end user information needs
  • What are the implementation challenges and solutions for clinical trials in comparative effectiveness research
Penny Mohr, MA
Vice President for Programs
Center for Medical Technology Policy

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5:30 pm -
6:30 pm
Networking, Cocktail Reception in the Executive Networking Lounge
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